ALPPS REGISTRY

ALPPSregistry Bylaws

Article I – Name and Purpose

  1. Name: The name of this initiative shall be “ALPPSregistry”.
  2. Purpose: To collect, curate, analyze, and share data regarding ALPPS procedures worldwide in order to improve patient outcomes, enhance surgical techniques, and promote scientific collaboration.

Article II – Membership

  1. Eligibility: Membership is open to liver surgeons, researchers, and affiliated healthcare professionals with an interest in ALPPS procedures.
  2. Types of Members:
    • Active Member
    • Honorary Member
  3. Membership Rights: Members have access to data contributions, reports, and participation in scientific activities.

Article III – Governance

  1. Governing Body: The registry shall be governed by a Executive Committee (Chair and Vice Chair).
  2. Leadership Structure:
    • Each registry platform under the ALPPSregistry umbrella shall have:
      • 1 Chair
      • 1 Vice Chair
    • The Chair and Vice Chair shall serve for a term of four (4) years.
    • Chairs and Vice Chairs may be re-elected for one additional term.
    • Each platform's leadership shall report to the central ALPPSregistry Executive Committee and collaborate on multicenter initiatives.

 

  1. Other Officers:
    • Scientific Coordinator
    • Clinical Research Manager

Article IV – Meetings

  1. Annual Meeting: An annual meeting shall be held to review data, research findings, and strategic planning.
  2. Special Meetings: May be convened by the Chair or upon request by the committee.

Article V – Data Use and Ethics

  1. Data Contribution: Participating centers must adhere to data protection laws and ethical standards.
  2. Data Access: Only authorized members or research collaborators may access de-identified data, subject to committee approval.
  3. Publication Policy: All publications must credit ALPPSregistry and follow authorship guidelines approved by the Executive Committee.